Leap of Faith: Dane’s Daring Journey of Overcoming Perthes Disease

Leap of Faith: Dane’s Daring Journey of Overcoming Perthes Disease

It is always fulfilling to learn about the impact Scottish Rite for Children has on patients beyond treatment. Recently, former patient Dane Hammack felt nostalgic about the care he received at Scottish Rite for Legg-Calvé-Perthes disease, also known as Perthes. Dane says his family re-located from Paris, Texas to Dallas so he could receive care here in the 1980s.

“My favorite thing about my time at Scottish Rite was the friends and staff,” Dane says. “I remember sharing a room with a kid who had a spine disorder. We would shoot ice at each other through bendy straws while we were bed-ridden.” Dane even remembers when the Dallas Cowboys cheerleaders visited!

Perthes disease is rare and is more commonly seen in boys. Approximately 10 children per 100,000 will be diagnosed each year. Our experts in the Center for Excellence in Hip are dedicated to uncovering the mysteries of Perthes disease, consistently advancing treatment methods through clinical studies. Even now, few doctors have experience in diagnosing and treating Perthes disease. Scottish Rite staff provide individualized and comprehensive care for the whole child’s physical and mental state – an aspect that Dane reflects positively on.

“The staff never felt sorry of my condition, which made me feel normal in a way,” Dane says. “Through the surgery and braces, I was able to get through it all.”

After completing treatment at Scottish Rite, Dane says he was able to enjoy his childhood to the fullest. He was very active and played on his high school’s football and wrestling teams.

“I moved to San Diego to be with my dad after treatment,” Dane says. “No one there knew me as the kid with the cast. I had the sense that I could do whatever I wanted to do.”

At age 20, Dane went to a Dallas military base to enlist in the U.S. Army. For each branch of military service, a series of examinations are conducted to see if the applicant meets the branch’s requirements. During Dane’s physical, his surgery scar from Perthes disease treatment was seen by the doctor.

“The doctor did an X-ray on my hip, and even I was in shock,” Dane says. “I was told I couldn’t enlist, because of the Perthes disease and its damage to my right hip. All I was asking for was to be given a fair shot.”

Dane decided to reach out to his local Senator, Sen. Phil Gramm at the time, and sent a letter that described his situation. “I handwrote that letter with pencil,” Dane says. “I just wanted to get going!” Dane’s letter to Gramm got his case moving, and his eligibility to enlist would be determined by one final task – run a timed 10K.

“My mother always said everything is only temporary and nothing lasts forever,” Dane says. “The worst times you will ever have won’t last forever.” After two years of challenges, Dane ran a successful time and finally enlisted into the U.S. Army.

For 12 years, Dane was in the U.S. Army Special Operations Command (Airborne) as a psychological operations specialist and then a jumpmaster. He travelled to many countries, such as Malawi, Namibia, Colombia and Ecuador to name a few. As a jumpmaster, Dane oversaw the safety checks for parachutes and was the first one to jump out of the plane. However, he sustained a back injury after a parachute accident and decided to leave the Army for life closer to family.

Dane applied to the U.S. Border Patrol in Arizona at the age of 32 and is still serving as a U.S. Border Patrol agent.

“Thinking back to what helped me was the people who supported me,” Dane says. “Thank you does not come close to expressing what Scottish Rite has offered me.”

Our patients’ stories are a timeless gift, reminding us why we serve and what an honor it is to give children back their childhood. When you come to Scottish Rite, you truly become a member of our forever family!

Do you have a story? We want to hear it! Share your story with us.

15th Year Scottish Rite for Children Ranked No. 1 in the Region and Among the Best in the Nation by U.S. News & World Report

15th Year Scottish Rite for Children Ranked No. 1 in the Region and Among the Best in the Nation by U.S. News & World Report

For more than a century, Scottish Rite for Children has defined greatness in pediatric orthopedic research, education and patient care. U.S. News and World Report has once again ranked Scottish Rite No. 1 in the Southwest Region, which includes Oklahoma, New Mexico, Arizona and Texas, rounding out at No. 4 in the specialty in the country.
 
We are privileged to help our patients, and for the past 15 years, this exceptional ranking continues to reflect our commitment to excellence and to providing world-renowned care to our patients and their families. Our multidisciplinary team of doctors, nurses, therapists and specialists collaborate to create a customized continuum of care for each patient and family. Our staff has cared for more than 360,000 patients, but not one is treated like a number.
 
Scottish Rite researchers have not only discovered and mapped genes associated with adolescent idiopathic scoliosis and other conditions but also have invented and advanced revolutionary medical devices resulting in more than 50 patents secured across the pediatric orthopedic discipline. These experts uncover the root causes of pediatric orthopedic conditions and translate their findings into groundbreaking treatments that defeat them.
 
Our physicians wrote the textbook that educates aspiring pediatric orthopedic surgeons and is used as the standard reference guide by practitioners worldwide. Scottish Rite’s fellowship program is one of the oldest and largest in the country, and the fellows have gone on to implement the knowledge they acquired and transform the lives of patients around the world. Our experts developed the consensus medical definition of dyslexia and authored the curricula that has trained therapists and given children with dyslexia the ability to read nationwide.
 
We meet every child where they are in body, mind and spirit. We restore muscles, joints and bones, allay fears and replace despair with hope.
 
About U.S. News Rankings
Introduced in 2007 to help families of children with rare or life-threatening illnesses find the best medical care available, U.S. News & World Report Best Children’s Hospitals rankings are the most comprehensive source of quality-related information on U.S. pediatric hospitals.
 
U.S. News, alongside a research and consulting firm, collected and analyzed data from 119 children’s hospitals and surveyed thousands of pediatric specialists. Children’s hospitals awarded a “Best” designation excelled at factors such as clinical outcomes, level and quality of hospital resources directly related to patient care and expert opinion among pediatric specialists.

Share Your Story: Oh, the Places You’ll Go!

Share Your Story: Oh, the Places You’ll Go!

Meet Beau, a patient who is seen by our team of multidisciplinary experts. Learn more about his journey below.

Blogs written by Beau and his mom, Courtney.

When Beau was 6 months old, he was placed in the Chinese orphanage system, and our family adopted him in 2017, when he was 4 years old. We did not know much about his history, as he lived in a very large orphanage and information was not passed along. We did know he would be somewhat of a medical mystery and booked his appointment with our pediatrician before we even left China.

Beau is a complex patient, and after a variety of appointments and tests, he was eventually diagnosed with a form of dwarfism called spondyloepiphyseal dysplasia congenita (SEDc) and a monoallelic mutation of COL2A1 gene. This is a rare genetic disorder that impacts different parts and systems of his body, including his eyes, hearing, spine and more.

In May 2021, Beau’s spinal curve rapidly started to increase, and that is when our orthopedic surgeon in Houston referred us to Scottish Rite for Children. We really love and trust our doctor in Houston, so it was very comforting to hear him say, ‘If my kid needed this done, where I’m sending you is where I would go. They are my number one choice.’ My anxiety as a mom went away, and I immediately started to research everything I could. We took the first available appointment and met Dr. Johnson for the first time at the end of June. She gave us a game plan for surgery, and we left with a sense of peace about the journey we were about to take with Beau at Scottish Rite.

In January 2022, Beau had spinal surgery and was in halo decompression for the next five weeks. Halo-gravity traction is the process of using a metal ring, or halo, attached to a child’s skull that applies traction to the spine, gently stretching and straightening out the spine to correct curvatures. – Courtney

I had so much fun in my halo, and my mom decorated my equipment, which made it even more fun! My walker was Mardi Gras-themed the entire time. I always had beads to hand out, and sometimes I even had a speaker playing Mardi Gras music!

My wheelchair was first decorated as the emperor’s throne, because of Chinese New Year, and I handed out handmade fortune cookies. I created all the sayings, and my mom made paper cookies. I even painted my face like a tiger, because we are in The Year of the Tiger.

For Valentine’s Day, my decorations were full of hearts, lights and sparkles. I had a cool shirt that said, ‘Just call me Cupid’ and wore an awesome red top hat with heart glasses. My mom and I made over 350 valentines, and we handed them out around the hospital. I know that there are a lot of people that are needed to make hospitals run smoothly, and I tried to meet all of them. I wanted to remind them that they are important, and I was thankful for all they did during my stay.

After surgery, I went home in a wheelchair. My farewell theme decorations were Oh, the Places You’ll Go! My mom said that this was a perfect theme to represent moving from China to the United States. Not only did I have to learn and adapt to a new world, but because of my spine surgery at Scottish Rite, I also have a new level of life, and nothing is going to hold me back!

I feel like I will be able to do anything I set my sights on, thanks to different people at Scottish Rite. The Therapeutic Recreation department allowed me to participate in sports and games that I never thought I would be able to do. My size can make sports hard, but they showed me how I could fully participate with just minor modifications.

When I was an inpatient, Ms. Dana gave me my very own Learn to Golf set of golf clubs, and we had a special visitor during therapeutic recreation – Mr. Carlos. He taught me how to play golf, plus he had a huge smile, was super nice, and has a special leg. We live near a golf course, and I have always wanted to learn how to play, but because of my size and my back, I never thought I would be able to participate. Mr. Carlos worked with me, and I learned how to make adjustments and was able to swing a golf club and hit the ball. After my big surgery, he even came to check on me. Learn to Golf will allow me to keep playing the sport and has connected me with special coaches, just like Mr. Carlos.

I am now back home in Houston and feeling good. I will always remember Scottish Rite for Children, and I look forward to my checkups because I can visit my friends all around the hospital, and they always remember my name!! – Beau

DO YOU HAVE A STORY? WE WANT TO HEAR IT! SHARE YOUR STORY WITH US.

Share Your Story: A Lifetime of Golf

Share Your Story: A Lifetime of Golf

Meet Ford, a patient who was treated by our multidisciplinary team of experts.

Blog written by Ford.

My name is Ford. I am 26 years old and also have cerebral palsy. When I was 10 years old, I had surgery on my legs at Scottish Rite for Children. The year before, I started participating in Learn to Golf and attended my first Learn to Golf clinic at a course in Lubbock, TX.

Learn to Golf introduced me to the sport and has since allowed me to play a game that changed my life!

When I would attend a Learn to Golf clinic, I would receive access to this wonderful game, as well as receive personalized instruction and equipment.

Golf is a sport that I plan on playing my entire life and to this day, I have many friends that I have made through the game. Golf keeps me motivated to care for myself and stay in shape throughout the ups and downs of life.

Words cannot express the level of gratitude that I have for Scottish Rite and Dana Dempsey. Dana not only works to serve children who have medical issues, but she also makes sure patients find joy in their lives! I am forever grateful for Scottish Rite, and if you have even the slightest interest in golf, you should participate in a Learn to Golf clinic.

The older I get, the more I understand how special Scottish Rite is. I don’t think anyone really wants to be in the hospital, but when you are at Scottish Rite, everyone there makes an effort for you to feel comfortable and welcome. I haven’t had an operation at Scottish Rite since 2007, but every time I pick up a golf club, I am reminded of the impact the hospital had on my life.

DO YOU HAVE A STORY? WE WANT TO HEAR IT! SHARE YOUR STORY WITH US.

5 Common Questions About Limb Lengthening

5 Common Questions About Limb Lengthening

At Scottish Rite for Children, the Center for Excellence in Limb Lengthening and Reconstruction includes a multidisciplinary team of experts who collaborate to determine the best treatment plan for each patient. We know there are a lot of questions if your child begins treatment for their limb length discrepancy. Below are the most commonly asked and the answers from our team. 

Do I Have to Have Surgery?

If the difference between the lengths of your limbs is significant (more than 1 inch), surgery may help to prevent problems in the future. For small limb length differences (1-2 inches), sometimes a small surgery (an epiphysiodesis) that slows down the growth of the long leg and allows the shorter leg to grow and catch up is all that is needed. For bigger limb length differences, lengthening the short leg is needed. There are different techniques for lengthening a leg, including lengthening rods that are placed inside the bone or an external fixator, an advanced device developed at Scottish Rite for Children that is around your leg and attached to your bone. The type of device used is frequently determined by the cause of your leg length difference. The Limb Lengthening and Reconstruction team will explain the best technique for you. Both techniques lengthen the bone very slowly over several weeks. 

How Does the Limb-Lengthening Device Work?

When using the lengthening rod, the doctors separate the bone in your shorter limb and insert the rod inside the bone. The rod will be secured to the bone at each end of the rod. After surgery, you will use a device that rests on your leg to activate the rod to slowly lengthen and separate the bone a little bit each day.  

The external fixator, the TL Hex External Fixator System, has rods that are attached to each side of the separated bone. These rods are connected to rings attached to the outside of your limb. Every day, you will turn struts that connect the rings and cause the rings and the bone to slowly separate and lengthen. The frame will support your limb while the rods help the bone to grow. 

Will Limb Lengthening Hurt?

During surgery, you’ll be under anesthesia, so you won’t feel a thing. Whether you use the lengthening rod inside the bone or the external fixator, there is soreness as the bone and muscles lengthen. Your doctor will be able to give you medication to minimize the pain. In addition, Scottish Rite for Children has pediatric psychologists who will teach you other ways to manage your pain.

How Long Will Lengthening Take?

The amount of time you will need to wear the frame will be determined by how much your limb needs to grow. Regardless of the technique, for most patients, it takes six to nine months from the time of surgery to the time you are back to running and jumping. Most of the bone lengthening actually takes place in the first few months. After that, it takes time for the bone to fully heal and for you to get your full strength back.

When Can I Return To My Normal Activities?

After you spend a little time healing from your surgery, getting back to as normal a routine as possible is really important. Lengthening your leg and doing your daily exercises becomes part of your regular day. You will go back to school and participate in many of your typical activities. If you have a lengthening rod, you will not be able to put all of your weight on the leg being lengthened and will have to use crutches until the bone is almost completely healed. If you have an external fixator, the frame will support your whole body weight and after a few weeks you won’t need crutches. While you are lengthening your leg, you will visit the doctor every week, but once the lengthening is completed, you will only need to visit monthly.