O.I. Coordinated Care Center: A Multidisciplinary Approach to Care

O.I. Coordinated Care Center: A Multidisciplinary Approach to Care

At Scottish Rite for Children, our experts care for the common to the complex of pediatric orthopedic conditions. Depending on the severity, a child might require treatment from various disciplines – needing specialists who can provide care for the different aspects of the disease. In order to do this, we have developed specialty clinics – like the Osteogenesis Imperfecta (O.I.) Coordinated Care Clinic.

Osteogenesis Imperfecta (O.I.), also known as brittle bone disease, is a group of genetic disorders that predominantly impacts the bones. Children born with O.I. have bones that break and/or fracture very easily from a minor injury or even from no apparent cause. Other common characteristics of the disease include:

  • Skeletal Deformity
  • Short stature
  • Severity of the disease determines the type: Type I, II, III, IV

As an institution who is dedicated to caring for the whole child, the purpose of the O.I. Coordinated Care Clinic is to provide comprehensive treatment for every aspect of the disease – making it easy for families to receive expert care for their child from different specialists in one location. Led by Chief Medical Officer B. Stephens “Steve” Richards, M.D., medical director of Abulatory Care Brandon A. Ramo, M.D., and pediatric nephrologist Mouin Seikaly, M.D., the clinic includes experts from the following disciplines:

  • Orthopedic surgery
  • Bone metabolism
  • Occupational and Physical Therapy
  • Psychology
  • Nutrition
  • Child Life
  • Therapeutic Recreation
  • Dentistry
  • Family Services
  • Developmental pediatrics

Our team understands that this can be an overwhelming diagnosis. We are here to help guide our families and provide support wherever it is needed.

Get to Know our SRH Staff: Carrie Wilson, Ambulatory Care

Get to Know our SRH Staff: Carrie Wilson, Ambulatory Care

What is your role at the hospital? 

I am the RN coordinator for Dr. Richards and I also assist with Dr. Sucato’s scoliosis clinic. My primary role is providing education to patients and families, as well as helping to get patients ready for surgery to make sure medical clearances are obtained. One day to the next is never the same!

What do you enjoy most about Scottish Rite for Children?
The patients and their families!

What was your first job? What path did you take to get here? How long have you worked here?
My very first job was as a lifeguard when I was in high school. During college, I had several different jobs. I worked at a restaurant in the summers (where I met my husband to be), I worked for a stockbroker and I worked at Dillard’s.

I started at the hospital during my last semester at Texas Woman’s University. I was initially a nurse tech and then after I graduated, I was hired as a full-time inpatient nurse. As of this month, I have worked here for 32 years and I’ve been the RN coordinator for Dr. Richards for the past 22 years.

What are you currently watching on Netflix?

Call the Midwife
Who would you most like to swap places with for a day?

Jerry Jones (owner of the Dallas Cowboys) – although I don’t think he could handle my job if we had to “swap”!
What is a fun or interesting fact about your hometown?My hometown is Des Plaines, Illinois. It is the home of the first McDonald’s franchise.
What is your favorite thing to do when you’re not working?
Watching football and spending time with my family.

Hospital Doctors Lead the Research and Education in Children with Clubfeet

Hospital Doctors Lead the Research and Education in Children with Clubfeet

At Scottish Rite Hospital, we are dedicated to providing world-renowned patient care. Our team of experts are able to do so through their steadfast commitment to advancing treatment through research and education. The hospital’s physicians and clinical staff are known worldwide for the research conducted in our Center for Excellence in Foot.

Clubfoot is one of the most common pediatric foot conditions that our experts treat. Through research, our team can study this patient population to better understand the condition and develop innovative treatment plans. With voluntary participation from patients, the team is able to review outcomes after treatment and assess how a child with clubfeet is functioning.

Recently, the hospital published two articles on their latest clubfoot research. Below is what our team is learning:

Functional Outcomes of Patient with Clubfeet at 10-year Follow-up
This research was led by Assistant Chief of Staff Lori A. Karol, M.D., Movement Science Manager Kelly Jeans, M.S., and other staff from the Movement Science Lab.

Summary

Our team analyzed outcomes of patients’ feet who received either the Ponseti serial casting (a form of treatment that places a cast from the thigh to the toes after gentle stretching of the foot) or French physiotherapy (daily stretching, exercise and massage, and taping to slowing move the foot to the correct position), and those who later required subsequent surgery. The Movement Science Lab recorded gait analysis, ankle strength, daily step activity and parent-reported outcomes of patients 10 years after receiving treatment.

What We Learned

  1. Children with clubfeet have less range of motion, movement and power in their ankle in comparison to children with normal feet.
  2. There are minimal differences in gait, parent-reported outcomes and daily activity between feet treated with Ponseti casting or physical therapy.
  3. Feet that did not receive surgery had better ankle power and muscle strength than feet requiring invasive joint surgery.

Clinical Significance

This study supports our efforts to minimize invasive joint surgery when treating a patient with clubfoot. Functional studies such as this continue to help our doctors in developing treatment plans for patients diagnosed with clubfoot.

Read the full article

Non-operative Treatment Outcomes for Patient with Non-Idiopathic Clubfeet
This research was led by Chief Medical Officer B. Stephens “Steve” Richards, M.D., and nurse practitioner Shawne Faulks, M.S.N., R.N., C.N.S.

Summary

Our doctors regularly diagnose and begin treating clubfoot during infancy. Since much of the non-operative treatment takes place before developmental milestones, some patients who were initially thought to have “idiopathic” (no known cause) clubfoot may develop other conditions throughout development rendering a “non-idiopathic” diagnosis. Little is known about the treatment outcomes of this population. Therefore, the purpose of this research is to better understand the clinical outcomes of patients who were later found to have non-idiopathic clubfoot, and how their outcomes compare to patients who have idiopathic clubfoot.

What We Learned

  1. Nearly 1 in 10 infants with idiopathic clubfoot were found to later have non-idiopathic clubfoot due to other orthopedic, neurological or developmental disorders.
  2. Non-idiopathic patients can be expected to respond favorably to non-operative treatment.
  3. Patients later found to be non-idiopathic had a greater chance for clubfoot recurrence that required surgery.

Clinical Significance

This study demonstrates the importance of developmental assessments during a child’s clinical visit. Pediatric orthopedic specialists should be proactive in evaluating more than just clubfeet or other orthopedic disorders during follow-up exams.

Read the full article

Learn more about the research in our Center for Excellence in Foot.