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Oklahoma girl with rare bone disease designs super hero casts

Oklahoma girl with rare bone disease designs super hero casts

by | Jul 6, 2018 | General News, Press Coverage

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CLEVELAND, Oklahoma –

An 8-year-old girl, who’s had more than 40 broken bones in her young life, got something special during her most  recent surgery.

Doctors diagnosed Courtney White with a rare bone disease when she was just a baby after she broke her femur twice in a matter of months.

The condition cause her bones to break easily, which means she spends a lot of time wearing casts.

Her most recent casts – one on each leg – feature Courtney as a super hero.

Courtney now has rod in every major bone in both legs. And doctors recently had to replace a rod in one shin and put a rod in the other.

Before the surgery, doctors at the Texas Scottish Rite Hospital in Dallas challenged Courtney to design her own cast. She drew up Wonder Woman boots because she’s a little warrior.

Her family will tell you, Courtney is a super hero in their eyes every day.

She has Osteogenesis Imperfecta, Type 6. Experts say only 6 to 7 people out of every 100,000 have OI and of those, only 1-percent lives with Type 6.

“We have found that each day is a new experience. We never know day to day what her mobility will look like or what her pain level will be or if we will have another injury,” her dad Justin White said. “That has been life for Courtney, it’s her normal and she has learned to embrace it.”

Courtney has broken 40 bones and has gone through 12 surgeries.

But despite all that, she still lives for adventure. She likes to hunt and fish and spend time with her mom, dad and big sister.

“She knows there are some things that she just won’t be able to do, but she also knows that there are many things that she can do, she’s just going to have to work harder for them than most people,” Justin said. “We’ve tried to teach her not to feel sorry for herself, but instead, accept things as they come and work through them.”

And that’s how she lives her life. He says Courtney is always positive, cheerful and faces every challenge head on – with unflinching faith.

A few days before Courtney’s most recent surgery her grandpa overheard her saying this prayer, “Father, thank you for this wonderful world that I live in, and thank you for my wonderful life. I love you so much, because everything you do is wonderful.”

Her dad says that’s Courtney, the bravest, toughest person he’s ever known.

“Her bones make break often, but her spirit and her faith never do,” her dad said.

Scoliosis Awareness Month: Casting for Scoliosis

Scoliosis Awareness Month: Casting for Scoliosis

by | Jun 27, 2018 | Scoliosis & Spine

Casting is a form of treatment for scoliosis and is used to prevent the curve from getting larger when children are young and growing rapidly. The cast works like a brace to control curve progression, but cannot be removed. Casts can be used when doctors are unable to control curve progression with a brace. As with a brace, when the cast is removed, the curve will still be present. Our goal is to keep the curve from getting larger.

Your child will be admitted to the hospital the day before or on the morning of each cast application. Your child will be given general anesthesia and will be asleep in the casting room before the doctor applies the cast. Gentle traction is used to correct the scoliosis curve as much as possible. The doctor applies a T-shirt liner and soft padding to protect the skin before the cast is applied. The cast will have holes (or “windows”) to allow the stomach to expand for eating and to allow plenty of room for breathing.

Your child will be able to go home either the same day the cast is applied or the day after. This cast may have an impact on your child’s balance and walking. Close supervision is important to prevent injuries from falls. Your child will adjust to the cast in a few days.

It is important for the cast to remain dry. If your child wears diapers, you will have to tuck the diaper under the cast at the hips. Your child will not be able to take a regular bath or shower while wearing a scoliosis cast. You will have to sponge-bathe your child during this time, as water will ruin the cast and can damage your child’s skin under the cast. Because of your child’s rapid growth, the cast will have to be changed every two to three months for up to one year. 

How to care for your child’s scoliosis cast:

  • Keep the cast as clean and dry as possible at all times to prevent skin breakdown and damage to the cast.
  • Give your child a sponge bath daily and wash all areas of skin not under the cast. Never give a bath or shower in the cast.
  • If itching is a problem you may use a hair dryer on cool setting to blow into the cast. You can also use distractions, such as games, music, reading, video games or counting to distract your child.
  • Never put anything in the cast to scratch the skin, as this can cause a sore or infection. You can pull the T-shirt liner up and down to relieve itching.
  • Never use powder inside the cast, as it may clump and irritate the skin. Do not use oil or lotion under or around the edges of the cast.
  • Never permit a child around a pool with a cast on or allow him/her to ride in a boat.
  • Do not allow your child to play in sand or dirt.
  • It is OK to draw on your child’s cast or put stickers on it. Be creative. Have fun with the cast.
  • You will be given a cast care book before you go home. The nurse will give you further instructions and waterproof tape and moleskin for cast edges to use at home as needed.

Call Scottish Rite Hospital:

  • If the cast is too tight.
  • If your child has decreased movement or sensation (tingling) in arms or legs.
  • If you notice skin breakdown.
  • If the cast cracks or breaks.
  • If you notice the cast position has changed.
  • If you notice a foul odor (beyond body odor). This can indicate a wound under the cast.
  • If an object (such as a toy, rocks, fork, etc.) gets into the cast and cannot be removed. This can cause a pressure wound under the cast.
  • If the cast is causing pain.