Share Your Story: Lifelong Commitment to Care

Share Your Story: Lifelong Commitment to Care

13-year-old Lyla and her mom Ashley have more in common than they originally thought. Ashley was diagnosed with scoliosis in 2000 after her mom noticed a spinal curve while she tried on clothes. A chiropractor referred her to Scottish Rite for Children to begin treatment. It was the attentive care and support from chief of staff Daniel J. Sucato, M.D., M.S. and her child life specialist that influenced Ashley’s pursuit for a degree in Child Development and Family Studies from the University of North Texas.

In 2020, Lyla embarked on her own scoliosis journey with Scottish Rite at age 9. With a mother’s eyes, Ashley first noticed Lyla’s shoulder blades were uneven. They visited their primary care physician, who referred them to Scottish Rite. Lyla’s scoliosis was juvenile idiopathic scoliosis, known as the most common type of scoliosis.
The uncertainty of Lyla’s diagnosis disappeared when Ashley and her husband Chad discovered that Sucato would be treating their daughter. “My heart sank because I knew what it meant to have scoliosis,” Ashley says. “However, Dr. Sucato has the kind of heart needed to serve and advance orthopedic care for children.” Lyla’s scoliosis was treated mostly with a back brace for two years. She underwent spinal fusion surgery in 2023 and is now free from back pain!

Research proves that scoliosis has a genetic component and tends to run in families. Children with a family history of scoliosis, like Lyla, are more at risk. This is predominately seen in girls that range from ages 10 to 15.

Ashley and Lyla’s bond is stronger than ever. Lyla is like her mom in many ways, outside of sharing a diagnosis of scoliosis. They are both passionate about helping others, and Lyla is set on going to college to become a child life specialist at Scottish Rite. “Scottish Rite helps children improve their quality of life,” Ashley says. “Most importantly, Scottish Rite creates life-long memories and shows us how we are supposed to love and help others.” Lyla is incredibly active now and enjoys many hobbies like acting, reading, dancing, singing, being with her friends and serving at church! Lyla and Ashley’s diagnosis and care mirror each other, reflecting the need for the accessible expert care Scottish Rite provides.

Share Your Story: Connor’s Comeback

Share Your Story: Connor’s Comeback

Meet Connor, a strong and determined athlete whose journey with Scottish Rite for Children began when he was just 10 years old. His scoliosis was first noticed by his mom when she noticed his clothes hung differently. She asked his pediatrician, who referred them to Scottish Rite spine experts. Visiting Chief of Staff Dr. Dan Sucato, Connor’s scoliosis was identified as a 30-degree curve at the time, prompting regular monitoring every six months.

As Connor grew and got more into school sports, his scoliosis curve increased too. His curve was 60 degrees, causing him discomfort. Frustrated with the limitations his condition imposed, Connor decided at 15 that he was ready for a change and opted for surgery.

Last summer, Connor underwent spinal fusion surgery. He spent three nights recovering in our inpatient unit. The support he received from our medical team eased his worries, making him feel at ease about the surgery. His quick recovery amazed everyone, allowing him to celebrate his 16th birthday with friends just two weeks later.

The transformation was remarkable. His shoulders were even, and his T-shirts fit properly. His dedication to recuperation and determination to regain his active lifestyle paid off. With his scoliosis corrected, Connor joyfully rejoined the high school junior varsity football team and played in his first game after taking a year off.

But it wasn’t just the surgery. Connor found comfort at Scottish Rite, from our yummy popcorn to our caring staff who he says felt like family to him. Dr. Sucato didn’t just fix his scoliosis; he brought back normalcy. With no more limping due to his hip pain, Connor got his life back. He’s loving football, golf, hiking and rafting. Watching sports and eating out with friends now brings him joy, as he embraces his new freedom without limitations.

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Researchers At Scottish Rite For Children Awarded Grant From National Institutes Of Health For Clubfoot Genetics Research

Researchers At Scottish Rite For Children Awarded Grant From National Institutes Of Health For Clubfoot Genetics Research

Researchers at Scottish Rite for Children and UT Southwestern Medical Center were recently awarded a grant from the National Institutes of Health (NIH) that will bring new opportunities to discover genetic causes of clubfoot. Clubfoot is a complex foot deformity where one or both feet are turned inward and pointed downward. At Scottish Rite, two nonoperative treatment methods are provided to children with clubfoot, though at times, surgical management may be required.
 
A research team at Scottish Rite, led by Jonathan J. Rios, Ph.D., is investigating the genetic basis of clubfoot. In 2021, Dr. Rios’ team published the largest genetic association study for clubfoot, which included analysis of approximately 8 million genetic markers in more than 8,000 individuals. As part of this effort, his team identified the first gene, FSTL5, associated with clubfoot using this approach. Using similar strategies, Carol Wise, Ph.D., Director of Basic Science Research at Scottish Rite, has led studies discovering genes associated with adolescent idiopathic scoliosis. “This award reflects the expertise of our research staff and the organization’s commitment to research excellence, a combination that enables continued discoveries of the genetic basis for pediatric orthopedic conditions treated at our institution,” Dr. Wise says.

Dr. Rios’ new award will utilize whole-genome sequencing to discover genetic causes of clubfoot. As part of this award, the Gabriella Miller Kid’s First Program will sequence the entire genomes of 407 individuals from 85 families with clubfoot. “The Gabriella Miller Program is a unique opportunity to apply comprehensive genomic technologies to tackle unanswered questions in the field and to discover genetic causes of pediatric orthopedic disorders,” Dr. Rios says. The new Kids First Project on Congenital Clubfoot, led by Dr. Rios, is a collaboration with Dr. Jacqueline Hecht, Associate Dean of Research at the McGovern Medical School at UTHealth Houston.

This is the second Gabriella Miller Project awarded to Dr. Rios. In 2016, the Gabriella Miller Project awarded Drs. Rios and Wise’s study of adolescent idiopathic scoliosis, which included whole-genome sequencing of 598 individuals from 168 families. “Scoliosis and clubfoot are the most frequent orthopedic conditions treated at Scottish Rite,” says Scottish Rite Chief of Staff Daniel J. Sucato, M.D., M.S. “Genetic and basic research is fundamental to improving how we care for children, and ‘big data’ studies such as these allow our scientists to tackle new research questions that will advance our understanding of these conditions.” Learn more about research at Scottish Rite for Children and the Scottish Rite for Children Molecular Genetics research team. Jonathan J. Rios, Ph.D., is the co-director of Molecular Genetics at Scottish Rite, as well as an associate professor in the McDermott Center for Human Growth and Development and the Departments of Orthopaedic Surgery and Pediatrics and is a member of the Simmons Comprehensive Cancer Center at The University of Texas Southwestern Medical Center (UT Southwestern). Carol Wise, Ph.D., is the Director of Basic Research at Scottish Rite and is a professor in the McDermott Center for Human Growth and Development and the Departments of Orthopaedic Surgery and Pediatrics at UT Southwestern. Daniel J. Sucato, M.D., M.S., is the Chief of Staff at Scottish Rite and is a professor in the Department of Orthopaedic Surgery at UT Southwestern.

Share Your Story: Strong and Independent

Share Your Story: Strong and Independent

Rhudi, a strong and independent 18-year-old from Natalia, Texas, had her life turned around when she was diagnosed with congenital kyphoscoliosis, a severe form of scoliosis that causes the spine to curve both to the side and forward or backward. Rhudi was an infant when her mom first noticed a curvature to her spine. Initially, Rhudi was monitored by a local South Texas orthopedist, but when she became a teenager, her spinal curve progressed, and they sought care and treatment from the experts at Scottish Rite for Children in Dallas.

Her condition took her away from her school, her friends and her family, but Rhudi’s parents were determined to get her the best treatment possible and to get her back home and active. In 2019, Rhudi underwent surgery with Daniel J. Sucato, M.D., M.S., which included the application of halo gravity traction, a device that attaches to the head and gently stretches the spine using a pulley device.

Rhudi was an inpatient at Scottish Rite while she continued treatment for her scoliosis and was in a wheelchair for about six months. While she was an inpatient, Rhudi made many friends and built relationships with the other inpatients and the staff who cared for her. During her physical therapy treatment, she was encouraged to go to college after graduating high school to become a physical therapist. She is now a senior in high school. She does all the things she loves, which includes Color Guard, mariachi, playing the violin and singing! She has learned a lot through her journey and hopes to keep helping others to work hard for their success.

“This hospital has taught me a lot and has made me who I am today. I have learned how to be a strong and independent person by working really hard for my successes.” – Rhudi

Learn more about our Center for Excellence in Spine.

DO YOU HAVE A STORY? WE WANT TO HEAR IT! SHARE YOUR STORY WITH US.

D CEO: Ask the Experts

D CEO: Ask the Experts

Previously shared in D CEO Magaizine.

How early will a child show signs of having an orthopedic issue that may need medical attention?

DR. DANIEL SUCATO: Orthopedic issues can present as congenital abnormalities of the bones, meaning the bones were not completely or normally formed in utero. This can occur in the spine or the upper and lower extremities. Often these patients do not require treatment early, or sometimes ever, but they should be evaluated to see if treatment is necessary.

DR. PHILIP WILSON: As a pediatric cartilage and ligament surgeon, we often see children with congenital meniscus or cartilage conditions within the knee. Sometimes these can present as early as toddler age, but more often young school-age with a loss of full extension or occasional limp.

What should I expect at our first visit to a pediatric orthopedic specialist?

DR. DANIEL SUCATO: At the initial visit, the family and patient will first meet with the provider to discuss the concerns and note any family history regarding the issue. A physical and orthopedic examination will evaluate the areas of concern. If necessary, appropriate imaging studies, such as ultrasound, plain radiograph, CT or MRI scan, will follow. Let your child know the imaging studies, if necessary, will not hurt.

DR. PHILIP WILSON: We also make sure the child is directly involved in the discussion. As kids get older, the perception and magnitude may be different for parents than it is for the child. Prior to the visit, parents can help by letting them know we are just going to check their muscles-no shots.

What are common issues in children that fall under the category of “pediatric orthopedics?”

DR. DANIEL SUCATO: Pediatric orthopedics involves anything related to children’s muscles, joints or bones, so that would be conditions like clubfoot, scoliosis, developmental hip dysplasia, and even traumatic or sports injuries. We also have subspecialties in spine, upper and lower extremities, foot and ankle, sports injuries, and fractures.

DR. PHILIP WILSON: Within pediatric sports medicine, conditions involving the cartilage or instability of the joint or injuries affecting the tissues around the joint are common reasons for treatment.

Do all orthopedic issues require surgery? What are other forms of treatment?

DR. DANIEL SUCATO: Most can be treated without surgery. Physical therapy can improve range of motion, strength, and flexibilit. Other treatments include bracing, casting, and anti-inflammatory medications.

DR. PHILIP WILSON: We always reserve surgery for use when other options are not available. In addition to what Dr. Sucato mentioned, sometimes simple reassurance to the family that the orthopedic condition is normal or will improve with age may be all that is required.