Rite Up Cover Story: The Sky is the Limit

Rite Up Cover Story: The Sky is the Limit

IF YOU ARE READING THESE WORDS WITH EASE, you likely acquired the skill shortly after mastering the alphabet. But what if you lacked the ability to match the proper sounds to the corresponding letters? What if that didn’t come to you naturally? Imagine, sitting at a desk in silent dread as your peers are called upon to read aloud. You stare at the page before you, trying desperately to decode it. Then, it’s your turn. You struggle to voice the words and suddenly, all eyes are on you.

That feeling was all too familiar for McKinleigh, age 12, of Arlington. The difficulty she faced didn’t catch her entirely by surprise, however. Her older brothers, Garrison and Garrett, had undergone testing for the same challenges. At age 5, she couldn’t read words but she could read the signs that told her, like them, she had dyslexia.

“It felt like everybody else could read and I just couldn’t,” McKinleigh explains.
“I was scared of what people would think of me.”

In 1965, pioneering neurologist Lucius “Luke” Waites, Jr., M.D., came to Scottish Rite Hospital to improve the lives of children like McKinleigh. At the time, the field of dyslexia was often misunderstood and discredited. Undaunted, Waites hosted a meeting of the World Federation of Neurology in 1968. At that meeting, the first consensus definition of dyslexia was formed, recognizing it as a medical condition.

This year, the Luke Waites Center for Dyslexia and Learning Disorders marks the 50th anniversary of hosting that momentous meeting. Scottish Rite Hospital continues to be an internationally recognized leader in the field, advancing teaching methods and conducting leading-edge research. We want the world of reading to be an open book for children because from there — the sky is the limit

“Children with this condition go to school expecting to be successful, just like they have been when learning to speak, play and interact with others,” explains Gladys Kolenovsky, administrative director of the Luke Waites Center. “When reading comes easily to other kids but not to them, it often leads to a sense of anxiety and failure.”
Dyslexia, which affects roughly 10 percent of children in the U.S., is characterized as a language-based problem connecting speech sounds to the letters of the alphabet. Children with the condition have difficulty learning to read and spell. As a result, comprehension of written material can also be challenging.

“It is not a vision or intellect problem,” Kolenovsky says. “Children who have
this condition are bright, talented and often gifted.”

In some cases, like McKinleigh’s, genetics can play a role. A child with a parent or sibling who has the learning disorder has a 30 to 50 percent chance of being born with it. “Our nieces and nephews started getting diagnosed with dyslexia,” McKinleigh’s mom, Deborah, recalls. Concerned about her own children, she received a referral to the hospital’s Luke Waites Center. Ultimately, all three children were found to have the condition as well.

Fortunately, their family was at the place where dyslexia was originally defined, a place that has remained at the forefront of dyslexia care and management at a national and international level —Scottish Rite Hospital.

“We are the experts and we share our knowledge,” Kolenovsky explains,
whether it’s through training educators to employ our techniques,
developing specialized curriculum programs or advancing research.”

One of the most influential ways that knowledge is imparted is through the center’s two-year therapist training program, which focuses on the application of a specialized curriculum. Jeffrey Black, M.D., who has been the medical director of the Luke Waites Center since 1990, has expanded the center’s research program. This led to the production of Take Flight: A Comprehensive Intervention for Students with Dyslexia, the hospital’s award-winning curriculum.

The enormous success of this program is reflected in the use of Take Flight at educator training centers throughout the U.S., each of which has at least one instructor trained at the hospital’s Luke Waiter Center. (See the graphic below.)

“We continue to be leaders in dyslexia intervention, helping improve the quality of services children receive in their schools,” says Black. “Through our training in dyslexia identification and the application of our curriculum, our center has had a broad influence across the country and on a global scale.”

The team is also pioneering approaches to identify the condition in children as young as kindergarten and first grade. In addition, the staff has partnered with The University of Texas at Dallas to develop an innovative technology that will reduce teacher training-time.

Fifty years later, the center continues to lead the dyslexia field with the pioneering spirit upon which it was founded.

“Once the barrier of not being able to read is removed, a child’s gifts and abilities can be revealed and then, the sky truly is the limit,” Kolenovsky says.

McKinleigh’s mother agrees. “To have children who didn’t think they could ever read, who felt like they didn’t fit in and now have great plans for their future, it’s priceless,” says Deborah of her family’s hospital experience.

Like her brothers before her, McKinleigh recently graduated from Scottish Rite Hospital’s Take Flight program. Her future plans are to be a marine and a doctor. She loves God, her family, horses and now, reading — especially in class.

“I always wanted to read but once people heard me struggle, they would just tell me to stop and call on somebody else,” McKinleigh says. “And now, I read out loud and they won’t stop me, because I can.”

Interested in reading this issue of Rite Up? Click here!

1968-2018: Celebrating 50 Years Since the First Consensus Definition of Dyslexia

1968-2018: Celebrating 50 Years Since the First Consensus Definition of Dyslexia

Over 50 years ago, the Luke Waites Center for Dyslexia & Learning Disorders was established to provide treatment and guidance to children with learning disorders. 

This week, the hospital is celebrating the 50th anniversary of the World Federation of Neurology’s meeting which formulated the first consensus definition of Dyslexia. In April of 1968, the first meeting of the World Federation of Neurology’s Research Group on Developmental Dyslexia and World Illiteracy took place at Scottish Rite Hospital. Below is the definition that was approved by the group in 1968:

Specific Development Dyslexia
A disorder manifested by difficulty in learning to ready despite conventional instruction, adequate intelligence, and socio-cultural opportunity. It is dependent upon fundamental cognitive disabilities which are frequently of constitutional origin. 

Throughout the decades, the Luke Waites Center for Dyslexia & Learning Disorders has grown to become the premier learning facility for both children diagnosed with a learning disorder and therapists in training. Director of the Center Gladys Kolenovsky, has witnessed the impact this group of experts has made on this patient population. “Since the beginning, we have been dedicated to giving children with dyslexia the tools and confidence to be successful both in school and in life,” says Kolenvosky. “As we embark on this 50-year milestone, it gives us a moment to reflect and give thanks to the group who gathered to define dyslexia and from that day has enhanced the care for these children.” 

Learn more about the Luke Waites Center for Dyslexia & Learning Disorders Center. 

Cody’s Moment – Dyslexia

Cody’s Moment – Dyslexia

When competitive gymnast Cody encountered a learning disorder, dyslexia, his family turned to the hospital’s internationally recognized team of experts. Cody’s schoolwork has improved by leaps and bounds, giving him the confidence to fly both in and out of the gym.

This month, we will be giving you a deeper look at our Luke Waites Center for Dyslexia & Learning Disorders on our Facebook page. Join us for patient stories, flashbacks and interesting facts.

The Gold Standard: Celebrating 50 Years of Pioneering Dyslexia Care

The Gold Standard: Celebrating 50 Years of Pioneering Dyslexia Care

Fifty years ago, a man with an unwavering conviction to help children joined Texas Scottish Rite Hospital for Children’s staff. His name was Lucius “Luke” Waites, Jr., M.D., and his pioneering work changed the world of learning disorders forever.

In 1924, Lucius Waites, Jr. was born in Hattiesburg, Mississippi, during a formative time in the study of learning disorders, such as dyslexia. The condition is characterized by a difficulty connecting letter symbols to sounds. It makes reading challenging and affects roughly 10 percent of all public school children.

For a child with dyslexia, the world can be a daunting place. Feelings of failure or isolation can often accompany the condition. Little did anyone know that one day Waites would not only study dyslexia, but he would also help define it and ultimately change perceptions, treatment approaches, education, legislation and the lives of countless children in the process.

While playing football for Ole Miss, Waites gained a reputation for being a fierce competitor, playing in the era of no protective facemasks. That fearless spirit and drive to succeed would serve him well throughout his career. He graduated from the University of Tennessee College of Medicine in 1947 and began his work as a neurologist. He came to Dallas in 1961 to join the faculty at UT Southwestern Medical Center. From 1961-65, he also assisted the Texas Scottish Rite Hospital for Children medical staff in the area of neurology.

During that period, Waites began to investigate the phenomenon of smart children who struggled to read. This condition was initially described as “word blindness” and “twisted symbols” (aka: Strephosymbolia). Research into this condition was considered fringe medicine at the time and often mocked as “quackery,” but the determined football player from Mississippi refused to give up. Then Scottish Rite Hospital Chief of Staff Brandon Carrell, M.D., observed the positive effect Waites’ methods were having on his patients and stood by his efforts. In 1965, Waites moved to Scottish Rite Hospital full time and the Luke Waites Center for Dyslexia & Learning Disorders was born. With the support of Scottish Rite Hospital and the Masonic community, Waites set out to build a program dedicated to diagnosing and treating children with the condition. Along with language therapist Aylett Royall Cox, Waites developed the hospital’s first dyslexia curriculum called Alphabetic Phonics. This new approach, with its dramatic and positive results, made waves in Dallas, across Texas and beyond.

“The support of the hospital, the administration and the board of trustees continues to be strong and crucial to our work,” says Gladys Kolenovsky, the center’s administrative director and a 39-year staff member. “From the beginning, they believed in what this center could do for children.”

In 1968, Waites organized a meeting of the World Federation of Neurology at the hospital, at which the medical term “developmental dyslexia” was defined. For the first time, dyslexia was recognized as a medical condition that called for an educational treatment.

But Waites did not stop there. In 1985, he enlisted the help of two equally tenacious colleagues — Kolenovsky and Geraldine “Tincy” Miller, a former staff member who has gone on to serve more than 26 years on the Texas State Board of Education. Together, they facilitated two major changes in Texas education laws — separating dyslexia from special education programs and requiring dyslexia screening and testing in all public schools. As a result of their efforts, Texas became a leader in public policy for learning disorders.

“Because of this incredible group of individuals who were willing to take a chance, so many people are able to stand on the shoulders of their legacy and their bravery,” says Karen Avrit, the center’s educational director, who recently helped pass House Bill 866. This bill ensures that all undergraduate education majors in Texas learn how to recognize, identify and make basic accommodations for children in their classrooms who may be dyslexic.

In 1990, Jeffrey Black, M.D., joined the Scottish Rite Hospital medical staff and the crusade, alongside Waites. Where Waites drew from clinical knowledge and child-focused intuition, Black revels in the scientific process. He set a high bar for data collection, results-driven experimentation and extensive research.

Black used precise, quantifiable measurements to prove that dyslexia could be remediated. From there, he proceeded to improve and adjust the existing curriculum based on his findings. It was through his unflinching dedication to data analysis that a new curriculum, Take Flight: A Comprehensive Intervention for Students with Dyslexia, was developed.

The curriculum allows children to learn the course material faster, with a higher retention rate. The first edition was printed in 2006. Today, Take Flight is used across America, in Canada and as far away as Dubai. The morning Avrit got a call from the Middle East inquiring about the program, she recalls saying, “Wow, we’ve gone international!”

The future of Take Flight looks bright, as Black and the team embark on the next journey in dyslexia education. Together with The University of Texas at Dallas, they are taking the curriculum into the digital arena. Through interactive technology, they will share the program with the next generation of children as well as increase its reach and scope for teachers.

Black is also pushing dyslexia research into the world of genetics. In collaboration with Jerry Ring, Ph.D., the center’s research scientist, and Scottish Rite Hospital’s remarkable genetics research team, work is being conducted to better understand dyslexia on a genetic level.

In 2013, the strong-willed Waites passed away at the age of 89, leaving behind a legacy that has changed the lives of individuals with dyslexia forever.

“It is wonderful to recognize Luke Waite’s legacy, while also paying tribute to the core values of the dyslexia department and the hospital,” Kolenovsky says. “The child comes first – always.”

**This article appeared on the cover of our Rite Up 2015: Issue 3 magazine. Read more from the magazine online