Polydactyly in Children and What Parents Need to Know

Polydactyly in Children and What Parents Need to Know

Polydactyly is a word that means “many fingers.” There are many forms of this common diagnosis. Some extra fingers are on the thumb side, some on the pinkie finger side and some in the middle of the hand. Polydactyly of the feet is also common. Some forms of polydactyly run in families; others come as new “surprises.” It is rare for the extra fingers to be fully formed normal fingers. Some of these fingers may be very small, floppy and have nonfunctional fingertips. Others will have bones and joints, and some may even have tendons and some movement. Some forms of polydactyly are “isolated,” meaning that there is nothing else the matter with the baby. Other forms of polydactyly may have other conditions such as webbing, twisting or angling of other fingers. In rare cases, there may be problems in parts of the body other than the hand. Polydactyly is common, it is not painful and it is not an emergency to treat.

How can polydactyly be treated?

The treatment of polydactyly depends on the exact shape and form of the extra digit, whether there are other problems in the hand and whether there are other more general problems for the baby. If the extra finger parts are very small, the treatment may be simply tying off or putting clips on the base of the finger to allow it to dry up and fall off (similar to the way the stump of the umbilical cord dried up, separated and fell off on its own). Any finger that is too big for this will require surgery that will be done in the operating room and done with general anesthesia for your baby. Some polydactyly cases require delicate reconstructive surgery to rebuild the best parts to save for your child’s best hand function. There is no hurry in doing this, because it is safer to wait until the baby is older. The risk of anesthesia is higher for a little baby and lower for an older baby. Your doctor will discuss with you the exact plan for the polydactyly type of your child.

Learn more about our treatment for hand disorders.

Scottish Rite Hospital Hosts Prestigious Hand Conference

Scottish Rite Hospital Hosts Prestigious Hand Conference

Scottish Rite Hospital’s Charles E. Seay, Jr. Center for Excellence in Hand Disorders is committed to caring for children with hand and upper limb conditions. The center is focused on providing innovative treatment to help patients live active and independent lives. In addition, the hospital’s hand team has become the leader in training hand surgeons from across the globe.

This week, the hospital is hosting the Marybeth Ezaki/Peter Carter Visiting Professorship. Established in 2017, this two-day conference brings together pediatric upper extremity surgeons, as well as other orthopedic surgeons, to discuss the latest treatment techniques in caring for children with complex hand conditions. The visiting professorship is in honor of Marybeth Ezaki and Peter Carter, both former staff hand surgeons who provided world-renowned care and innovation during their time at the hospital.

The hospital is welcoming Steve E.R. Hovius, M.D. – a certified plastic and hand surgeon from Radboud University Medical Centre Nijmegen and at the Xpert Clinic Hand and Wrist Centre Rotterdam. He brings decades of experience, serving as the head of the department of Plastic and Reconstructive Surgery and Hand Surgery at the Erasmus University Medical Centre Rotterdam. The meeting also includes presentations and discussions from hospital staff.

Director of the hand center and co-director for this program Scott Oishi, M.D., FACS, is proud to host such a prestigious group. “Treating pediatric hand conditions can be tricky,” says Oishi. “It requires a specialized team who is dedicated to learning and advancing their techniques. This program is unique in that it brings together hand specialists, both near and far, to discuss the care and treatment of a pediatric hand patient and collaborate on current research.”

Learn more about the hospital’s Center for Excellence in Hand Disorders.

#SRHaccess Facebook LIVE Recap: Overgrowth Related Syndromes

#SRHaccess Facebook LIVE Recap: Overgrowth Related Syndromes

On this week’s #SRHaccess Facebook LIVE, Director of the Center for Excellence in Hand Scott Oishi, M.D., joined us to discuss the hospital’s expertise in caring for children diagnosed with overgrowth related syndromes. Below is a recap of the conversation.

Watch the live segment.

Common overgrowth conditions:

  • Macrodactyly – abnormally large fingers and toes caused by an overgrowth of soft tissue and bone.
  • An overgrowth related syndrome can affect the upper and lower extremities, as well as muscles throughout the body.
  • The overgrowth can have vascular anomalies – an impact to the veins and lymphatic system.
  • In the hand, the thumb, index and middle fingers are the most common extremities affected. Those fingers are along the same nerve distribution area.

Fast facts about overgrowth related syndromes:

  • Every presentation is different.
  • Severe cases where an extremity (arm or leg) is significantly bigger than the other, it is possible for it to be detected on an ultrasound.
  • Once a child is born and taken to an orthopedic specialist, the diagnosis can be clear from the physical presentation.

Once diagnosed:

  • The hospital’s hand team will counsel the family.
  • As of now, research does not show any genetic cause to an overgrowth syndrome. It is also not related to anything the mother did or did not do while pregnant.
  • A blood/tissue sample may be taken from the affected extremity to be sent off for genetic testing to see if there is a mutation in the DNA.
  • Nothing is done immediately with an infant and the hand experts will observe the patient as they grow.
  • If a child is born with an extremely enlarged limb and have rapid overgrowth within their first year of life, a treatment plan will be put in place sooner rather than later.
  • In mild cases, the child will be observed until their limb is the size of the same sex parent. From there, the doctor will decide whether intervention is needed, such as surgery.

Learn more about the common hand conditions our experts treat.

Symbrachydactyly: Did You Know?

Symbrachydactyly: Did You Know?

Our Center for Excellence in Hand cares for the common to the complex of upper extremity disorders. Depending on the patient and their hand difference, our experts put together an individualized treatment plan to help the child have the most function as possible.

One of the common hand conditions seen at the hospital is symbrachydactyly. Although the literal definition of this term is “short, webbed fingers,” many different presentations can be seen.

Here are the top things to know about the condition:

  • Symbrachydactyly occurs when an arm or hand does not develop completely while the child is in the womb. Depending on the case, it is possible for the child to be missing joints, fingers or an entire hand. A child could have small finger remnants called “nubbins.”
  • Children with the condition are generally healthy.
  • The direct cause of this condition is unknown and a genetic etiology is not thought to be present.
  • It does not cause any pain to the child.
  • Our team works with each patient to help them function independently and participate in normal activities.

Learn more about the common hand disorders our experts treat.

WFAA: Born without hands, Desmond Blair turns challenges into something beautiful

WFAA: Born without hands, Desmond Blair turns challenges into something beautiful

Desmond Blair, a former hand patient and current Scottish Rite Hospital employee, has spent much of his life surprising people with his artistic abilities. Despite his hand difference and people’s doubts, Desmond followed his longtime dream of being an artist. Now he produces beautiful artwork that is sought after throughout the country.

Watch WFAA’s feature on Desmond to learn more about his story.