Share Your Story: Strong and Independent

Share Your Story: Strong and Independent

Rhudi, a strong and independent 18-year-old from Natalia, Texas, had her life turned around when she was diagnosed with congenital kyphoscoliosis, a severe form of scoliosis that causes the spine to curve both to the side and forward or backward. Rhudi was an infant when her mom first noticed a curvature to her spine. Initially, Rhudi was monitored by a local South Texas orthopedist, but when she became a teenager, her spinal curve progressed, and they sought care and treatment from the experts at Scottish Rite for Children in Dallas.

Her condition took her away from her school, her friends and her family, but Rhudi’s parents were determined to get her the best treatment possible and to get her back home and active. In 2019, Rhudi underwent surgery with Daniel J. Sucato, M.D., M.S., which included the application of halo gravity traction, a device that attaches to the head and gently stretches the spine using a pulley device.

Rhudi was an inpatient at Scottish Rite while she continued treatment for her scoliosis and was in a wheelchair for about six months. While she was an inpatient, Rhudi made many friends and built relationships with the other inpatients and the staff who cared for her. During her physical therapy treatment, she was encouraged to go to college after graduating high school to become a physical therapist. She is now a senior in high school. She does all the things she loves, which includes Color Guard, mariachi, playing the violin and singing! She has learned a lot through her journey and hopes to keep helping others to work hard for their success.

“This hospital has taught me a lot and has made me who I am today. I have learned how to be a strong and independent person by working really hard for my successes.” – Rhudi

Learn more about our Center for Excellence in Spine.

DO YOU HAVE A STORY? WE WANT TO HEAR IT! SHARE YOUR STORY WITH US.

Adam Jamnik: Medical Student Research Fellow, Research

Adam Jamnik: Medical Student Research Fellow, Research

Scottish Rite for Children offers a Medical Student Research Fellowship (MSRF) for medical students interested in gaining experience in clinical research. Fellows work with a lead faculty mentor throughout the year and several project supervisors who are pediatric orthopedic faculty at Scottish Rite. Fellows work as a crucial part of the research teams in various Centers for Excellence at Scottish Rite and are responsible for a variety of research projects.

Meet Adam, a MSRF at Scottish Rite in 2022 who works with Brandon A. Ramo, M.D., in the Center for Excellence in Spine.

What inspired you to apply for the MSRF position?
I am currently applying to residency in orthopedic surgery and have long felt that I would want to make research a part of my future career. Though I have had the opportunity to conduct research in medical school and as an undergraduate, I knew that a year-long research fellowship position would dramatically enhance my research skills, ultimately benefiting me for years to come. The MSRF position was a perfect fit for me. I am primarily interested in pediatric orthopedics, so Scottish Rite for Children, as a preeminent clinical and research facility, was always on my radar. I knew that the amazing physicians and research infrastructure here would provide me the support and learning opportunities to make the most of this year.

Have you always been interested in medicine and/or research?
I primarily became interested in medicine during high school, where I loved my science classes. During that time, I was also a ski instructor for children ages 3-7. That experience made me realize that I would really enjoy a job working with people and helping others.

When I was thinking of ways I could combine my passions for science and making a direct impact on peoples’ lives, medicine seemed like a natural fit. As for my interest in research, that began during college. The laboratory components for my biology and chemistry classes were great learning experiences, but I wanted the experiments I was conducting to further our understanding of the world around us and to have the experience of formulating my own questions. I ended up getting involved in two research labs — one that studied epigenetics and another that studied the interaction between hunger and sleep.

What is it like working at Scottish Rite for Children?
Working at Scottish Rite has far surpassed my expectations. First, I think the organization in general has an incredibly positive atmosphere. The people seem genuinely happy to come to work and are excited to help children dealing with orthopedic conditions. The attendings have given me invaluable career guidance and research mentorship. The research coordinators have been instrumental in supporting my projects and making sure I can make the most of my year here.

Can you share a few sentences about someone at Scottish Rite who has been a mentor to you and how they have impacted your experience? What project are you working on with that mentor?
One of my primary mentors at Scottish Rite is Dr. Brandon Ramo. From the outset, Dr. Ramo has supported me through every step of the research process. One of the projects we are working on is determining how adolescents’ experience with scoliosis has changed over the past two decades. During that time, Scottish Rite has given a survey (known as the SRS-30) to patients prior to their surgery to gauge their level of pain, how they feel about their appearance, activity levels and mental health. We determined that some of these metrics have taken a turn for the worse and hypothesize this may be related to changing societal pressures and norms.

How do you think this experience will impact your career path?
As I mentioned, I am hoping to make research a part of my future career. My experience at Scottish Rite has allowed me to further develop an understanding of the research process as well as the skills needed to conduct research, such as developing good research questions, selecting appropriate inclusion and exclusion criteria, identifying the variables needed to answer a given research question and ultimately publishing results. I am confident that this experience will improve the quality of the research that I conduct throughout my career and will likely influence the practice setting I ultimately select for my career.

What progress have you made towards your career goal since beginning the program?
I am applying for residency this year, and interview season just started at the beginning of December! My research experience at Scottish Rite will likely be brought up in all my interviews, so I am grateful that the team here has helped me have such a productive time thus far.

What is your favorite project that you are currently working on or have worked on at Scottish Rite?
My favorite project has been the one I mentioned earlier, on the evolution of SRS scores. Another project that I am proud of looks at the performance of magnetically controlled growing rods (MCGR), which is a newer scoliosis treatment for patients that are still growing. It involved reviewing hundreds of X-rays, but I am really happy with the end product and think it adds significantly to the conversation on a newer treatment modality.

What advice do you have for future MSRF participants?
My advice would be to really dive in! A year is a short period of time, especially in research when there are so many moving parts. Don’t be afraid to juggle a few projects at once because each project will demand different amounts of attention at different times.

What is one thing most people don’t know about you?
I love trying different restaurants! I am originally from New York, so it has been great exploring the Dallas food-scene.

Anything else you would like to add?
I would just like to reiterate my thanks to Scottish Rite! I am so grateful for all the resources they’ve provided me. The work that is done here for patients is absolutely incredible, and it is very rewarding to have played a small part in that. This one year will benefit me and my career for decades to come. I am confident that through those years, I will leverage this experience for the benefit of my patients.

We’re recruiting Medical Student Research Fellows for 2023! If you are a third-year medical student looking to take a gap year before applying to residency, take advantage of this unique opportunity! Only three positions are available for 2023.

Learn more and apply here on our Careers page.

Forbes Health: Scoliosis: Symptoms, Treatments, Mental Health Affects And More

Forbes Health: Scoliosis: Symptoms, Treatments, Mental Health Affects And More

Scoliosis is a spine condition that affects approximately 2% to 3% of the global population, according to the American Association of Neurological Surgeons. Whether you have scoliosis yourself or know someone who does, read on to learn more about the condition, its types and causes, common symptoms and treatments, how it can affect mental health and more.

Read the entire article.

Innovative Spinal Surgery Techniques for Scoliosis

Innovative Spinal Surgery Techniques for Scoliosis

In scoliosis patients with a significant curve of 50 degrees or more, spinal surgery is often the best treatment option. Surgery is also an option for scoliosis patients who did not achieve success with bracing. At Scottish Rite for Children, we offer multiple types of surgery to correct scoliosis including spinal fusions, as well as new and innovative methods like vertebral body tethering (VBT) and the magnetically controlled growing rods, also known as MAGEC rods, for children that are still growing.  Learn more about the different types of spinal surgery offered at Scottish Rite below.

Spinal Fusion
The most common surgery performed to treat scoliosis is called a spinal fusion. In a spinal fusion, the curved vertebrae are fused together to create a single, solid bone. This stops the growth in the abnormal part of the spine and prevents the curve from worsening. Metal rods attached by screws are used to hold the spine in place until the bone heals. In all spinal fusions, a bone graft is used to help promote the fusion and the bones grow together to create one solid bone.

  • Patients who have a spinal fusion will see an immediate improvement in the curve of their spine. This surgery also prevents the spine’s curve from progressing over time.
  • Most patients have a recovery period of about six weeks, during which some activities like bending or heavy lifting must be limited.
  • Following a spinal fusion, most patients can return to their normal activities after recovery, which usually is about four to six months.
  • In most cases, patients who undergo a spinal fusion do not require any additional surgeries.

Vertebral Body Tethering (VBT)
VBT is a surgical treatment for idiopathic scoliosis in growing children. This surgery technique uses a strong, flexible cord that is attached to the spine with screws and anchors and as a child grows, their spine will straighten over time. The cord encourages the spine to straighten as the patient grows. Vertebral body tethering is a growth modulation treatment that takes advantage of the spine’s natural growth. Growth modulation means modifying the normal growth patterns through tethering. The tether is placed along the curved side of the spine. This tether is used to slow down the growth of the curved side of the spine while the untethered side continues to grow. By using a tether, the spine can continue to bend and flex. It is not a fusion procedure which is an advantage of pursuing this treatment.

  • VBT is an ideal treatment for children with idiopathic scoliosis who have curves of 30 to 65 degrees and who have significant bone growth remaining.
  • Unlike a spinal fusion, VBT allows for greater mobility and flexibility of the spine.
  • VBT surgery is less invasive than a spinal fusion and involves a shorter recovery time. In most cases, patients can return to most activities within three to four weeks after the surgery.
  • Unless a concern with the tether develops, the implants will not need to be removed once placed by the surgeon.

MAGEC (MAGnetic Expansion Control) System ®
A MAGEC rod is a growing device technique used for patients diagnosed with early-onset scoliosis (EOS) – children under the age of 10. In comparison to a spinal fusion, this is a less invasive, innovative treatment that reduces the number of surgeries a child must undergo. Once the surgery has been performed and the MAGEC rod is in place, the back must heal for about four to six months. Once the spine has healed, then the patient will return to the clinic for his or her first lengthening session. During lengthening, the physician will use a magnetic wand to locate the magnets inside the MAGEC rod and make a mark on the back. Using an External Remote Control (ERC) device, the doctor will then lengthen the rod with a noninvasive adjustment. An X-ray or ultrasound of the spine is then used to confirm the procedure’s success.

  • The MAGEC rod is ideal for patients under the age of 10 who have a curve approaching 50 degrees and other forms of treatment (i.e. bracing, casting) have not been successful.
  • Children may need several lengthening sessions over time to achieve proper results.
  • During the ongoing lengthening sessions, children may remain active and continue all their favorite activities.
  • Lengthening sessions do not typically cause pain and additional surgeries are not usually required.

Each surgical technique has different uses and not all types of surgery will be the right fit for every patient. It is important to discuss all treatment options with your doctor to learn what will work best for your child.

Learn more about scoliosis treatment and surgery at Scottish Rite for Children.

Myths About Scoliosis: Causes & Treatment

Myths About Scoliosis: Causes & Treatment

What is Scoliosis?
Scoliosis is a progressive condition that causes the spine to curve into an “S” or “C” shape. It affects approximately two to three percent of school-aged children and is most common in girls ages 10-15. There are several different types of scoliosis, but the most common is adolescent idiopathic scoliosis (AIS).

Causes and Risk Factors
Idiopathic means that the cause is unknown. Research has proven that scoliosis has a genetic component and tends to run in families. Children with a family history of scoliosis are more at risk, especially those aged 10-15. Girls tend to be diagnosed with scoliosis more than boys, and the condition is not limited to a specific ethnicity or race. Groundbreaking research at Scottish Rite for Children is working to determine the cause of scoliosis, better understand factors that lead to curve progression, explore ways to prevent curve progression and improve treatments.

In congenital scoliosis, the cause is known. For example, a child may be born with a misshapen vertebra, one of the building blocks of the spine. Interestingly, recent research has also shown that congenital scoliosis may be partially genetic as well. Finally, a scoliosis curve may also develop from an underlying neurological disorder, known as neuromuscular scoliosis.

Dispelling the Myths
When it comes to scoliosis, it is important to know facts versus fiction. Below we correct some of the myths about scoliosis:

  •  Slouching, bad posture, sleeping position, or carrying heavy books, backpacks or purses will NOT cause scoliosis.
  • A lack of calcium will NOT cause scoliosis.
  • Scoliosis is NOT the result of doing anything “wrong,” and there’s NO way to prevent it.
  • Scoliosis does NOT cause severe or disabling pain in children.
  • Scoliosis CANNOT be prevented by exercise or by sitting up straight.
  • Scoliosis CAN continue into adulthood but is very treatable with bracing, physical therapy and/or surgery.
  • Surgery is NOT the only treatment available.
  • Chiropractic adjustments do NOT treat scoliosis.

Early Treatment is the Key
Early screening and intervention are key to successful scoliosis treatment. It is important that your child is screened by a health professional for scoliosis annually so that any abnormalities can be identified quickly. Screening involves looking at the spine via physical examination for asymmetry of the shoulders, shoulder blades and hips. A parent, school nurse or friend may notice a small difference in the shape of your child’s back or you might notice that clothes begin to fit differently.  Depending on where the curve is located in the spine, when you look in a mirror, you may see that one shoulder is raised or that “one hip is higher than the other.” In most schools, girls are screened in school at age 10 and again at age 12, while boys are screened once at age 13 or 14. If your child appears to have scoliosis during a screening, you will be notified and sometimes referred to an orthopedic specialist. If the specialist confirms true scoliosis, then the sooner treatment is begun, the need for surgery may be able to be avoided.

Bracing to Prevent Surgery
In less severe cases of scoliosis, surgery can altogether be avoided with the use of an orthotic brace. Braces are highly effective in treating scoliosis, but only if they are worn properly and according to the doctor’s guidelines. At Scottish Rite, all scoliosis braces are made on-site in our Orthotics & Prosthetics lab. This allows us to make same-day adjustments for fit or comfort. Wearing a brace diligently can prevent the progression of the curve, reducing the need or risk for surgery.

Each scoliosis brace that we make includes two dime-sized temperature sensors that track wear time. One is for our record keeping and can be tracked with each visit. The other is a Bluetooth sensor that can be connected to the parent and patient’s cell phone app. Created by Scottish Rite experts, the Brace Rite app uses real-time data, allowing parents, patients and your doctor to monitor wear time to ensure your child stays on track.

Physical Therapy to Prevent Progression
While scoliosis cannot be prevented, certain physical therapy techniques can be used to treat the condition and may prevent further progression. Scottish Rite has physical therapists that are trained and certified in the Schroth Method, a scoliosis-specific exercise approach. The Schroth Method focuses on correction of the curve pattern through a combination of stretching, strengthening and breathing in reverse directions, all based on each patient’s unique spinal curve. Using the Schroth Method can stop the progression of the curve, improve mobility and promote proper posture.

My Child Needs Surgery – Now What?
Not all cases of scoliosis can be treated without surgery. In significant curves of 45 to 50 degrees or more, surgery may be the best treatment option. There are several surgical techniques used to treat scoliosis, but the most common is spinal fusion. In a spinal fusion, the curved vertebrae are fused together to create a single, solid bone. This stops the growth in the abnormal part of the spine and prevents the curve from worsening. Metal rods attached by screws, hooks and/or wires are used to hold the spine in place until the bone heals. In all spinal fusions, a bone graft is used to help promote the fusion and the bones grow together to create one solid bone. Once a spinal fusion has been performed, patients can usually return to their normal activities within three to four months. However, each case is unique and some timelines may differ. At Scottish Rite, our Sarah M. and Charles E. Seay/Martha and Pat Beard Center for Excellence in Spine employs six pediatric orthopedic surgeons who specialize in spinal surgery for scoliosis using the latest innovative techniques and treatment methods.

Learn more about the importance of scoliosis screening.