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Share Your Story: A Visit From the Tooth Fairy

Share Your Story: A Visit From the Tooth Fairy

by | Jul 28, 2020 | Clubfoot & Foot Disorders

Meet Jade, a patient who is treated by our experts in the Center for Excellence in Foot. Learn more about her journey below.

Blog written by Jade’s mom, Deirdra, of South Carolina. 

We first noticed a growth on Jade’s ankle in March 2017. Initially, we went to her pediatrician and were told that it was cancer. They did an X-ray and the doctor could not determine what the growth was. He then sent us to Scottish Rite for Children and as soon as we met with Dr. McIntosh we all felt better

Jade needed a CT scan to take a better look at her ankle. Luckily, we learned that she in fact did NOT have cancer. Jade has an incredibly rare condition called Trevor’s Disease. Basically, this causes an overgrowth of cartilage and we were told to come back in six months to check for additional growth.

In October 2017, Jade started to experience pain when walking and running. It also happened to be time for her follow-up appointment, so after discussion with Dr. McIntosh, we determined that surgery would be the best option for Jade. Her surgery was scheduled for the next month. It was the day of her surgery and everyone was amazing – the nursing staff, the doctors and even the pastor who prayed with us made us feel at ease. Jade did wonderful and even woke up a few dollars richer. She had a couple of loose teeth that the anesthesiologist needed to remove, and the tooth fairy visited her in the operating room! It was incredibly special for us to have such a caring staff.

At the time of her surgery, we were living in Texas. We have since moved to South Carolina, but we still make annual trips back to Dallas just to see Dr. McIntosh for Jade’s follow-up appointments. Scottish Rite for Children means everything to us. Everyone is willing to help, and they make all children feel special. When a kiddo is going through major surgery, it is so nice to have amazing staff surround you for every step of the journey.

DO YOU HAVE A STORY? WE WANT TO HEAR IT! SHARE YOUR STORY WITH US.

Share Your Story: Back on His Feet

Share Your Story: Back on His Feet

by | Mar 4, 2020 | Prosthetics & Orthotics

Meet Jayden, a patient seen in the Prosthetics & Orthotics department. Learn more about his journey below.

Blog written by Jayden’s mom, Ashley of Carrollton. 

Jayden hurt his leg during a basketball camp back in January 2019. We were told that it was a bad sprain and if he iced and kept it elevated, everything would be fine. He did as he was told, and the swelling went down. Jayden continued to play basketball and almost made it through the entire spring season. A couple of weeks later, his knee gave out on him and he fell down the stairs. Ice helped the swelling decrease, but by that point even walking had become painful for Jayden.

I took him to an urgent care clinic to have an X-ray taken of his knee. The clinic immediately referred us to an oncologist and on March 6, 2019, Jayden was diagnosed with osteosarcoma, a type of bone cancer. The next couple of days were a whirlwind. We saw specialists, he underwent many different tests and procedures and on March 16, 2019, Jayden started his first round of chemo.
 
Everything happened quickly, and Jayden remained tough and fought hard! Over the next couple of months, he had eight rounds of chemo, but ultimately, we all decided that it was best to amputate his leg. On June 4, 2019, Jayden had his right leg amputated through the knee. He quickly recovered from surgery and was able to resume his chemo treatment plan.

A couple of weeks later, Jayden started the process of getting his prosthetic leg and in September, was able to take his new leg home!  
 
I was proud of his tough attitude and determined spirit as he worked hard to learn how to walk, run, jump and balance on his new leg. He did all of this, while still receiving chemo.

He finished chemo on November 2, 2019, only to receive bad news on his final scans. Unfortunately, there were two tumors in his right lung that needed to be removed. On December 17, he went back into the operating room and after four hours of waiting, we received a Christmas miracle. The surgeons did not find anything, and Jayden was able to go home, just in time for Christmas.
 
Over the past couple of months as Jayden has learned to live life as an amputee, he has noticed a couple things that bother him. He was able to express these thoughts in a video that he made for a school project. At one of his appointments with Dr. Herring, Jayden was even able to get a behind the scenes look at the video department at Scottish Rite. He loved getting to learn about the cameras and everything that goes into producing videos.

To us, Scottish Rite is the bridge that will take us to the next level in Jayden’s journey.

He is excited to start the next chapter of his life, as an amputee. Scottish Rite means the world to us and has helped us so much. Jayden is now back on his feet – running and playing with his friends.

DO YOU HAVE A STORY? WE WANT TO HEAR IT! SHARE YOUR STORY WITH US.