Share Your Story: Chief Growing Officer

Share Your Story: Chief Growing Officer

It’s Limb Loss and Limb Difference Awareness Month, and we want to highlight our patient Isa, who also happens to be the 2022 Gerber baby! Learn more about her journey below.

Blog written by Isa’a parents, John and Meredith. 

What prompted seeking medical attention?
During our 20-week ultrasound, we learned that Isa would be born with a limb difference. We began educating ourselves on the resources available, and when she was born, we met with our local children’s hospital to discuss initial treatment options. We were fortunate to be able to seek out further treatment recommendations from experts in lower limb differences.

How did you learn about the Scottish Rite for Children?
During our initial consultation at our local children’s hospital, they directed us to Scottish Rite and assured us that the providers who would care for her are truly experts in their field. After looking online and reading about treatment options available and testimonials from children and families, we asked to schedule an initial appointment. 

Can you describe Isa’s treatment journey?
We first met Dr. Tony Herring and Dr. David Podeszwa on May 24, 2022. This was an incredible visit and ultimately what helped us to decide that Scottish Rite was where we wanted Isa to get her care. 

Both Dr. Podeszwa’s and Dr. Herring’s teams met with us together. They noted that this doesn’t typically happen, but they wanted us to be able to meet with both teams on the same day. Everyone present was so kind. Dr. Podeszwa started by reviewing Isa’s images (previous MRI from another facility) and discussing treatment options as she got older. Dr. Herring followed and discussed the amputation process for her right foot. He showed videos of children with similar limb differences doing things like walking, running and even slam-dunking a basketball! Seeing these videos and hearing about the successes of other children with similar conditions helped us to feel more confident in the treatment plan for her.

One of the unique opportunities that Scottish Rite provides is peer support. We were matched with another child and family who had a similar limb difference and had been through the amputation and prosthetic journey. Being able to speak with another child and family, again, helped us to feel confident in the treatment plan and hopeful for all the things Isa will be able to do in the future.

After that, we had an additional follow-up visit with Dr. Herring, and then on January 19, 2023 Isa had a Syme amputation of her right foot. The hospital stay helped to prepare us for taking care of her and setting her up for a successful recovery. We cannot thank our nurses, physical therapists, child life and other support staff enough during our time in the hospital! Isa was so loved by everyone, and we felt the support from everyone around us. The hospital stay was short, and on January 21, we started our journey back to Oklahoma.

After the surgery, we had several contacts with Martha, the nurse who works with Dr. Herring, and with Rosie in Child Life. They were instrumental in helping us with questions that arose post-surgery. It was only a few short weeks and then we were back at Scottish Rite following up with Dr. Herring!

At her appointment on February 13, she was cleared to meet with prosthetics to get the first casting for her prosthetic leg. We met with Director of Prosthetics Don Cummings two separate times before we returned on March 21 for her final fitting and physical therapy. Though the initial sessions of physical therapy were challenging, by the third day, Isa was standing and taking supported steps with her new prosthesis! Brenda H. and her team were amazing at making Isa feel comfortable, so she could take those amazing first steps. Child Life specialist Rosie, also visited with us and gifted Isa a stuffed cat, who has an amputation like hers. We spent three days with Don and Brenda who worked to adjust Isa’s prosthetic to the perfect fit. We are so grateful for the education and guidance they provided us. We even had time for a call to our oldest daughter, Tempe, who told us what color she felt Isa would like for the outside of her prosthesis: purple with sparkles. Don said he would work to make Tempe’s vision come true.

We will be forever grateful for the experiences we have had with the teams at Scottish Rite. This has been and will continue to be an amazing journey. 

How would you describe your overall experience at Scottish Rite?
The experience has been amazing. From our first contact to schedule the appointment with Dr. Herring and Dr. Podeszwa to our most recent visit with Don Cummings and Brenda H., we have always felt that everyone at Scottish Rite is there because they love the work they do each day. Each person you meet greets you with a smile and engages you in conversation. Everyone is helpful and always works to provide resources or direct you to the correct person for your needs. The facility is unlike anything else that we have ever experienced and truly works to give children back their childhood.

What are some things Isa likes to do?
Isa loves ANYTHING that her big sister does. She follows her around and always wants to play. Isa loves to play with Duplos and Fisher-Price® Little People. She loves Sesame Street®, especially Elmo® and Cookie Monster®. She loves being outdoors and going for walks. Isa loves being helpful. She will bring you your shoes if it is time to leave. 

She wants to help brush her teeth, and she puts away her toys when it is time to clean up. She loves to talk to others and show them things. Isa has a large vocabulary already and gains new words every day! Also, she loves to crawl and climb. Once she gets comfortable with her prosthesis, it is going to be hard keeping up with her!

 

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A True Trailblazer

A True Trailblazer

Serving as chief of staff for more than 34 years, Tony Herring, M.D., solidified Scottish Rite for Children’s stellar reputation for pediatric orthopedic research, education and patient care. He is loved by his patients, highly respected and admired by his colleagues and truly unmatched in his tireless contributions to Scottish Rite for Children. To Herring, the most satisfying part of being a physician is helping children. “They are open vessels to be filled with joy and learning and are truly our hope for the future,” he says. “We constantly seek to find the best ways to help every child to reach his or her full potential.”

While completing his Harvard Combined Orthopaedic Program – Orthopaedic Surgery residency, Herring became fascinated with children’s orthopedics. He joined the Navy and was able to continue his pursuit of children’s orthopedics while serving. As his time with the Navy was coming to an end, Herring heard about Scottish Rite. He visited the facility and was impressed with their devotion to the care of children. When he also learned that he would be working in a brand-new hospital, he knew that this was just the place that he was looking for. Herring has now been with Scottish Rite for 45 years. He enjoys what he does so much that he doesn’t consider it to be work. “I have quite a number of hobbies, but I have come to realize that I enjoy seeing children in the clinic, teaching the many residents and fellows that I work with and doing the surgeries that the children need much more than I enjoy my hobbies,” says Herring. “That’s why I drive or bike to work just about every day.” An example of Herring’s commitment to the care of children is the Amputee Ski Trip. Forty years ago, Herring had the vision to create the annual trip that fosters a sense of self-confidence, discovery and independence in its participants.

Herring is an expert physician and surgeon and an astute researcher. He has authored/co-authored 130 publications and has edited four editions of Tachdjian’s Pediatric Orthopaedics, the three-volume textbook known as the worldwide standard for pediatric orthopedics. Herring has received numerous honors and awards. He is most proud of serving as President of the Pediatric Orthopedic Society of North America. He has received lifetime achievement awards from that society as well as from the Scoliosis Research Society, the Pediatric Orthopedic Society of Germany, and was made an Honorary Fellow of the Royal Society of Surgery of Ireland. In addition, he has twice received the Russell Hibbs Award for research from the Scoliosis Research Society. He has recently received the Regent’s Outstanding Teacher Award (ROTA) from the University of Texas, one of two physicians from UT Southwestern so honored. Relative to that, he has trained almost 200 fellows in pediatric orthopedics and scoliosis and hundreds of orthopedic residents during their pediatric orthopedic rotations.

Despite all these accomplishments, when asked what he is most proud of, Herring’s response is not on this list of awards and organizations. “First, I am most proud of being allowed the great privilege and responsibility of taking care of children,” says Herring. “In that realm, the progress which each patient makes is a worthy accomplishment. Secondly, I am proud of being part of a team that has taken this hospital to a world leadership position through our patient care, our teaching, our research, our textbook and our contribution to the national societies related to our specialties. Our leadership has made life better for literally millions of children everywhere.”
Herring has dedicated his career to providing groundbreaking treatment for his patients. “It’s been such a fun place to work, I don’t ever want to leave it,” Herring says. “It’s the happiest place you could ever work.”

Learn more about Scottish Rite for Children’s 100-year history. 

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Share Your Story: Too Hip for Dysplasia

Share Your Story: Too Hip for Dysplasia

Meet Sadie, a patient who is treated by our experts in our Center for Excellence in Hip. Learn more about her journey below.

Blog written by Sadie’s mom, Sarah Beth, of Longview. 

Sadie on her bed, smiling.

Sadie was diagnosed with Developmental Hip Dysplasia (DDH) at the age of 2 months old, when our pediatrician noticed a clicking in her right hip. We lived in Houston at the time and initially saw a pediatric orthopedic surgeon there. She wore a pavlik harness until she was 6 months old, with little to no improvement, and then switched to a Rhino brace. Both the Pavlik and the Rhino were worn for 23 hours a day, only giving her one hour of “freedom” each day. While she was hitting her development milestones, she was making little improvement on the angle of her hip. As we approached her second birthday, surgery became more and more of an option.
During this time, we moved to the Dallas area and made the switch to Texas Scottish Rite Hospital for Children.

We immediately felt a sense of calmness when we met with Dr. Herring and his staff for the first time.

His knowledge on her condition and his willingness to wait to let her body continue to grow was exactly what we were hoping for. For the first time in Sadie’s hip journey, I felt peace with her condition.

As time passed, we continued with her checkups and eventually decided that a pelvic osteotomy would be necessary for Sadie to gain adequate coverage of her hip socket.  The hospital staff did a great job answering all of our questions and helped us through this journey. Sadie likes to explain the surgery by telling people that her hip was shaped like an “L” and they had to shape it more like a “C.”
Deciding to have a major surgery did not come without some hesitation, but the doctors and nurses were incredibly patient with my lists of questions.

Dr. Herring with Saddie

The child life specialists were able to provide a sense of calm for Sadie in situations where my husband and I did not know how to keep her calm. 

They walked her through the surgery beforehand, helped keep her entertained throughout her inpatient stay, distracted her when different lines were removed and eventually told her that it was okay to giggle when the cast came off because it may tickle. That team was an absolute life-saver!

Sadie
Sadie spent six weeks in a Spica cast and during that time, learned to army crawl, maneuver herself and function with absolutely no problems. Her attitude and determination during this time was amazing.

Since having her cast removed, she has had two X-rays and they each show good coverage of her right hip socket. She quickly returned to normal activity and seeing her now, you would never know that there had ever been anything wrong with her hip or that she was in a cast for six weeks.

I completely trust the doctors, nurses, child life specialists and staff of the hospital. Their knowledge and welcoming atmosphere have made many potentially stressful situations a lot easier for our family.

From Sadie’s point of view – “My favorite part of staying in the hospital was getting to go the playroom and meeting the Texas Rangers. I love getting popcorn after each checkup and playing on the playground.”

Additional information on Developmental Dysplasia of the Hip

 

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Share Your Story: Parker and the Superhero Leg

Share Your Story: Parker and the Superhero Leg

Meet Parker, a patient who is treated in our Prosthetics and Orthotics department. Learn more about his journey below.

Blog written by Parker’s father, James, of Flower Mound. 

In August 2012, our family traveled to Nanchang, China to adopt our two youngest sons, Parker and Xander. Overnight, our family of four expanded to six and we were fortunate to be blessed with two of the sweetest, most resilient boys you will ever meet. As you can imagine, it was a life-changing event that we will never forget.

Prior to our journey to China, we were connected with Texas Scottish Rite Hospital for Children as we prepared for Parker and Xander’s arrival here in the U.S. Both boys were born with limb differences and we knew that we would need to find a health care provider that could handle their special needs. In Parker’s case, we were particularly curious to learn what options were available for him, since he was born without his right femur and tibia. He was unable to walk in the traditional sense.

From our very first consultation onwards, the Scottish Rite Hospital staff could not have been more accommodating – from walking us through how the care process would work to answering our questions about artificial limbs. Over the years, we had heard many glowing stories from friends and acquaintances describing what the hospital meant to them and their families, but none of this really hit home until we got to experience all this for ourselves.

Once we arrived back home to the U.S., Parker was pretty overwhelmed with all the changes. At only 20 months, he had already been whisked away from the only home he knew, an orphanage in Nanchang. Everything and everyone he had ever known was gone and he was then inserted into a crazy family, which consisted of a new Mom and Dad, two older siblings and a younger sibling that was going through a similar adjustment period. Add into the mix a couple of large Great Danes and you basically have a recipe for constant chaos around the Wood house.

Although he was (and still is) amazingly resilient, it was a huge adjustment. While in China, he began to learn a few words in Mandarin and now he was challenged with learning a new language. Communication was difficult and further exasperated by all the complex emotions he was feeling. He was very shy, uneasy in public and struggled a lot with separation anxiety.

During this period, Parker had his first visits to our local pediatrician and, while she is fantastic, he was absolutely terrified – you could literally feel the heat waves coming off his body. We feared the worst when the time came to start our visits at Scottish Rite Hospital. Since he had been born with a partial foot, the process was difficult and would not be as easy as just fitting him for a prosthesis. In order to make things work, he would need to have his partial foot removed or work around it. This was not an easy decision for us since he used that partial foot to pseudo-walk on his knee.

When the time came for the surgery, we really didn’t know what to expect. Parker’s visits to the hospital were successful and he had already taken pretty well to Dr. Herring and “Dr. Kara.” Surgery and overnight visits were something we honestly weren’t sure he was prepared for emotionally

What actually transpired was beyond any of our expectations.

From the moment he arrived, we were greeted with countless friendly faces in his room. For a kid who normally hated large crowds, he really ate it all up. It’s hard to imagine having a fun time during major surgery, but I daresay he did – at least as much as you can when having your foot amputated. Probably the best thing we can say about Scottish Rite Hospital is that they took a really scary event in his young life and turned it into a positive memory. After the surgery, he was made to feel like a celebrity, and he left a different kid in so many ways.

patient being diagnosed
patient with a robot behind him

The entire experience was truly remarkable.

In the years that have followed, Scottish Rite Hospital has become a routine part of Parker’s life. I’ve never met a kid that’s more excited to go to the doctor and he loves to point out the hospital when we drive by. Seeing him walk for the first time was miraculous and we’ll never forget the smile on his face when he discovered how to walk on his own. He’s been the talk of the playground at school – but in a good way. We hear kids all the time telling their parents that they “wish they could have a cool leg like that” or “Mom! Look! That kid has a Transformer leg!” That’s not to say that it’s all been sunshine and roses of course, but it helps. Getting to meet other kids with similar limb differences and being able to see firsthand how others have been able to use their prosthetic legs to run and dance has made it so much easier for him to just be a kid and have a normal life. 

Parker is a confident kid who now has the ability to get out there and try activities that his siblings have enjoyed. He has tried gymnastics, soccer, t-ball and is about to give basketball a whirl. He may not always have the speed that other kids have, but he is able to get out there, compete and surprise kids with his craftiness. It’s pretty incredible to watch.

As parents, we’re eternally grateful for all the wonderful work that Scottish Rite Hospital has done, not only for our own children, but also for countless children throughout the U.S. and beyond. It’s a truly magical place.

Parker’s Superhero Leg from Scottish Rite for Children on Vimeo.

DO YOU HAVE A STORY? WE WANT TO HEAR IT! SHARE YOUR STORY WITH US.